Video Transcription
devastating, leaving you bed bound for weeks or months. It's also misrepresented and stigmatized
with sufferers often accused of just being lazy or having mental health problems. Over the past
few months we've been hitting people with LE and their families to find out what life's like for them.
She was four, she was born *****. She was embarrassed of her illness, which is like
if you imagine someone with cancer being embarrassed they have cancer, it's just ridiculous.